Saturday, March 5, 2011

Roller Coaster called CCSVI

It is quite a roller coaster of emotions after CCSVI. Dr. Arata expressed there were two "milestones" for lack of a better word, to acheive post surgery. The first being within the first 2 weeks post procedure. If symptoms return within this time frame then it is a good indicator that the valves weren't successfully destroyed or torn allowing blood flow through. Unfortunatly doctors are unable to see when the valves are torn so only by hearing it or feeling the valve tear will they be able to confirm it. So it still may of torn successfully even if they weren't able to hear of feel it tear, so that is why if the symptoms have returned then it is known that it didn't tear. The second milestone is around the 3 month mark. At this time he expressed that there is a chance that the valves could heal back in such a manner that it will cause scar tissue by closing up the valve again. At this point your symptoms would come back. He said if this was the case, they could go back and at this point visually see the scar tissue and more easily distroy the valve. So I felt very hopeful, and excited as the two bumps both seemed to be able to be fixed....However I must say the optimism came and went. It is quite emotional always wondering, self checking, and stressing wether your symtoms were returning. When you have the liberation treatment done, some symptoms are relieved instantly like for me fatigue and brain fog. However some take time...a long time. So it is then when old symptoms are showing their ugly heads that I have a daily struggle and wonder, am I restonosing or do I just have to be more patient?